User Guide - Centre hospitalier de l'Université de Montréal
Contents
1. CHU CHUM de Qu bec SERVICE AUX LARYNGECTOMIS S ET PROGRAMME D AIDE LA COMMUNICATION SAL PAC PROGRAMS FOR LARYNGECTOMIZED TRACHEOSTOMIZED AND GLOSSECTOMIZED PATIENTS This document was revised by The Speech Language Pathology Services of the CHUM and the CHU DE QUEBEC 2014 revision SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC Programs for Laryngectomized Tracheostomized and Glossectomized Patients Q CHUN de Qusbac User Guide Table of Contents Page Nene ON 3 SAL PAC OPERATING RULES AND PROCEDURES ruurnannnnnvnnrvnnnnrnnnrnnnnnnennnennnennnennnennner 4 SAL PAC Clientele c ccccccccccccccececececeecaeeecaeecaeeeceecceeeceueeaeecaeeaueeautecseeaueesaeseaeeeaeeenenesanss 4 SAL PAG Registration scciinecinsadactodesnceesteznincnicilencaatadestndesbcacsdeardaas avian dincadectetavidbosteaadeestannis 4 User Responsibilities ee 5 COST 5 Communication Aids Available rrrrrrvrnrvrnnnnnnnnnnnvnntrnntrnnnrrnnrrnnrrnnnnn sner nnennnennnennnennnennnennne 6 Assessment of Needs rarnnunnnnnnnnnannvnrnrrnnnnnnrernnnnnennennnnnernnenneernennnnnnnennnennennsnnnerernnennenneene 6 Distribution of Communication Aid8 ii iiiiiiiiiiuiieereereeeeeneeeneeeneecees 6 Rehabilitation Service rranrrnnrnrnnnrnnrrnnrrnnnn nen nnnnnntennnennnennnennnennnennnernnernnernnennrenernnenunenunenn 7 GONGLUSION ua kne 8 DECLARATION OF COMMITMENT TO THE SAL PAC anernnvnnnnnnnn2. aid and not to exchange give away or sell it respect all safety rules pertaining to the use of any communication aid for myself and others accept the communication aid that meets my needs whether new or reconditioned notify those responsible for the program of any damage to the communication aid replace the aid if it is stolen lost or damaged through negligence or abuse fire or vandalism respect the quotas established for the communication aid return the communication aid to the SAL PAG if I no longer use it or if I use another means of communication notify those responsible for the SAL PAC of any change in my address I also accept that if I do not honour my commitments toward the SAL PAG the program managers reserve the right to withhold the SAL PAC s resources from me I authorize the hospital to give my name address and telephone number to the Canadian Cancer Society in order to obtain certain supplies if I am eligible Patient s signature Date Witnesses Date Address Telephone Mandatory information Revised 2014 9 i CHUM TA de Qu bec RETURN OF A COMMUNICATION AID Date User s name name at birth DESCRIPTION OF THE COMMUNICATION AID Device Number Accessory Accessory Accessory Returned by Telephone no Reason for return Received by I understand that by accepting this communication aid I am respo
3. soap e g dish detergent A cannula cleaning brush may be used to clean the interior if there are any adhering secretions Rinse well with clean water Air dry or use a soft cloth to dry it before wearing it or putting it away Do not use petroleum based products such as Vaseline to clean or insert it Revised 2014 12 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN de Qu bec User Guide SPEAKING VALVE PASSY MUIR PORTEX SHILEY Fill a bowl with warm water and add mild soap Plunge the valve into it and agitate it in the water Let it soak a few minutes if any secretions adhere to it Do not use hot water peroxide bleach vinegar rubbing alcohol a brush or cotton swabs to clean the valve Rinse well with warm water under a gentle spray Let it air dry completely before returning it to its case Do not use heat or hot air to dry the valve Do not sterilize it in an autoclave CLOTH STOMA COVERS Wash by hand in warm water with mild soap Do not use bleach Dry flat Do not dry in a clothes dryer Revised 2014 13 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN de Qu bec User Guide SOME HELPFUL ADDRESSES FOR ENT PATIENTS F D RATION QU B COISE DES LARYNGECTOMIS S The associations
4. that make up the F d ration qu b coise des laryngectomis s have the goal of establishing links among the members and their areas To that end each association is responsible for organizing activities to periodically bring their members and their loved ones together It is thus the perfect place to receive information support and certain supplies in addition to giving laryngectomees a chance to practice their new voice The Federation also has volunteers who actively participate in the rehabilitation of people who have recently undergone surgery by visiting them before and after surgery ASSOCIATION DES LARYNGECTOMISES DE MONTR AL 5556 Sherbrooke St East corner of Assomption Blvd Montr al QC H1N 1A2 Tel 514 259 5113 ASSOCIATION DES LARYNGECTOMISES DE QUEBEC Suite 240 4765 1 Avenue Charlesbourg QC G1H 2T3 Tel 418 622 5704 CANADIAN CANCER SOCIETY The CCS provides material assistance to people affected by cancer who live at home Among others it provides tracheotomy care supplies Forms available at http www cancer ca Consult the Support amp services Financial help and Material assistance sections In Montr al In Qu bec City 5151 Assomption Blvd Suite 214 1040 Belv d re Ave Montr al QC H1T 4A9 Qu bec QC G1S 3G3 Tel 514 255 5151 Tel 418 683 8666 INFORMATION DOCUMENTS Services Guide Service aux laryngectomis s et Programme d aide a la communication SAL PAC New Voice
5. New Life Guide for Laryngectomees Printable documents http www chumontreal qc ca patients et soins departements et services orthophonie or http www chuq qc ca fr les soins autres soins orthophonie htm Revised 2014 14
6. any users who do not respect their commitments in order to correct the situation Following this if the user continues to disregard their commitments to the SAL PAC the program managers reserve the right to withhold access to the services of the program In that case a letter will be sent to the user to explain why access to these services has been withheld COSTS When you need a communication aid that is provided through the SAL PAC that aid is provided at no cost without regard to your or your family s ability to pay The communication aid will be repaired and replaced by the program unless it has been stolen lost or damaged through negligence or abuse or following a fire or an act of vandalism For that reason we suggest that you contact your property insurance provider to inform it that you are using a communication assistance device that has been Revised 2014 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN de Qu bec User Guide loaned to you You should also advise your loved ones of this loan In case of theft loss or negligence the SAL PAC reserves the right to refuse to lend you another device COMMUNICATION AIDS AVAILABLE The SAL PAC divides communication aids into two categories communication aid devices which are loaned communication assistance supplies which are given In additi
7. ked up to one of these centres depending on their address For patients who live in eastern Qu bec the supraregional distribution centre is the CHU de Qu bec For patients living in western Qu bec the supraregional distribution centre is the CHUM The healthcare professional who registers you for the program will tell you which supraregional centre you must contact This document explains the program to you and your loved ones At the end of the guide is a Declaration of Commitment that you are asked to sign in order to access the resources of the SAL PAC You can ask the health care professional who registers you any questions you may have You can also contact the supraregional distribution centres for which the contact information is listed on page 11 of this guide Revised 2014 3 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN de Qu bec User Guide SAL PAC OPERATING RULES AND PROCEDURES SAL PAC CLIENTELE The SAL PAC is open to anyone covered by the R gie de l assurance maladie du Qu bec RAMQ and who has undergone a total or partial laryngectomy a tracheotomy a glossectomy or who has a major and persistent ENT impairment that makes oral communication difficult The program excludes hospitalized clientele as well as clientele already covered by any other program Provincial government Commi
8. lude all the supplies you will need for the coming month when you place your order However if you forget something you can go to the supraregional distribution centres to pick it up You must inform the distribution centre if someone else goes in your place The addresses and other contact information of the distribution centres can be found at the end of this document When a change is made with respect to your supplies the change will be applied only at the next mailing If you must return your communication aid we advise you to bring it yourself or to send it directly to the distribution centre If you give it to someone else to take to the distribution centre for you ask that person to complete the document on page 10 and keep it as proof The SAL PAC does not pay postage expenses if you return a communication aid to the distribution centre by mail You must assume that cost REHABILITATION SERVICE The SAL PAC prefers that users undergo rehabilitation at the institution where the surgery was performed If it is impossible for your institution to provide that service it can direct you to another institution in your region Revised 2014 7 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN de Qu bec User Guide CONCLUSION The CHU de Qu bec and the CHUM s speech language pathology services are supraregional distribu
9. munication aids Some specific requests made to the SAL PAC are reviewed by its managers and expert clinicians who which will then transmit their decisions to the healthcare professional who referred you If a request is refused the healthcare professional who registered you will contact you DISTRIBUTION OF COMMUNICATION AIDS All communication aid devices are loaned The supraregional distribution centres CHU de Qu bec and the CHUM remain the owners of these devices at all times When the distribution centres retrieve communication aid devices they repair them as needed and Revised 2014 6 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN de Qu bec User Guide ensure that they are disinfected in order to redistribute them to other users Your communication aid is sent to the healthcare professional who registered you when you first made your request This speech therapist will give it to you and explain how to use it Afterward disposable supplies or a replacement device if the one you have breaks down and must be replaced will be sent to you directly by mail If you must change the type of communication aid you are using your speech therapist must carry out a re assessment Supplies are mailed out once a month to each patient either to your address or that of your speech therapist You must ensure that you inc
10. nsible for returning it to the distribution centre within 10 days Signature Date Revised 2014 10 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN de Qu bec User Guide CONTACT INFORMATION FOR SAL PAC SUPRAREGIONAL DISTRIBUTION CENTRES CHU de Qu bec FOR EASTERN QU BEC Centre hospitalier universitaire de Qu bec CHU DE QUEBEC L H tel Dieu de Qu bec Service aux laryngectomis s Programme d aide la communication 1565 11 C te du Palais Qu bec City QC G1R 2J6 Telephone 418 691 5095 Fax 418 691 5377 CHUM FOR WESTERN QU BEC Centre hospitalier de l Universit de Montr al CHUM H pital Notre Dame Service aux laryngectomis s Programme d aide la communication K 3246 3 floor Pavillon Mailloux 1560 Sherbrooke St East Montr al QC H2L 4M1 Telephone 514 890 8000 extension 25585 Fax 514 412 7899 Email sal pac chum ssss gouv qc ca The distribution centres are open from Monday to Friday during regular clinic hours Revised 2014 11 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN de Qu bec User Guide COMMUNICATION AID CARE ARTIFICIAL LARYNX Do not immerse the device Clean the outside with a damp cloth and mild soap Only the mouth tube can be wa
11. on for historical reasons the supraregional distribution centres provide certain supplies that are not used for communication These supplies are referred to as other supplies As these supplies are not included in our mandate from the Minist re de la Sant et des Services Sociaux the SAL PAC cannot guarantee that they will always be provided at no charge You will be informed if there are any changes regarding these supplies In order to be fair to all patients and for budgetary reasons each user is entitled to one 1 communication aid device which is loaned The communication assistance supplies are distributed on the basis of annual quotas which must be respected by everyone For more information about the available communication aid devices and supplies you can speak with your speech therapist or your healthcare professional They can guide you according to your situation and your needs ASSESSMENT OF NEEDS To procure a communication aid you must have been assessed by a speech therapist That person can then file a request for a communication aid from the SAL PAC Another healthcare professional cannot file a request for a communication aid without the consent of the SAL PAC Patients cannot file their own requests for a communication aid However after you have received your first communication aid you may make your own request to renew the loan of your communication device A medical prescription may be required for some com
12. shed in water with mild soap See below MOUTH TUBE FOR ARTIFICIAL LARYNX Clean regularly in warm water using mild soap Let it soak all night Rinse well Allow it to air dry Do not put it on the sound generator if it is damp Use it only after it is completely dry We recommend that you rotate between two tubes TELEPHONE SPEECH SYNTHESIZER AND VOICE AMPLIFIER Do not immerse the device Clean the outside with a damp cloth and mild soap A computer vacuum cleaner may be used to clean the keypad and buttons BLOM SINGER TRACHEOESOPHAGEAL VOICE PROSTHESIS Clean with warm water and mild soap If secretions adhere to the walls let it soak in warm water and mild soap The secretions can be detached by gently rubbing the interior walls against one another Do not use a cotton swab or a pipe cleaner to clean the interior of the prosthesis as this could damage the valve Rinse well with warm water under a gentle spray Allow it to air dry completely before putting it back in its case Do not use heat or hot air to dry the prosthesis The prosthesis may be disinfected if you have a fungal infection by letting it soak all night in a 3 hydrogen peroxide solution Afterward rinse well with fresh water and air dry VALVE FOR TRACHEOESOPHAGEAL VOICE PROSTHESIS Clean with warm water and mild soap Rinse well and air dry before wearing or storing it in its case TRACHEOSTOMA VENT STOMA BUTTON Soak it for 15 minutes in warm water and mild
13. ssion de la sant et s curit au travail CSST Indemnisation des victimes d actes criminels IVAC Soci t d assurance automobile du Qu bec SAAQ Programme minist riel des aides techniques a la communication PMAT COM Federal government Veterans Affairs Aboriginal Affairs Any other program for immigrants or refugees If you are already covered by one of these programs the healthcare professional who registered you may take steps to harmonize the SAL PAC with your other program SAL PAC REGISTRATION A healthcare professional usually a speech therapist must register you for the SAL PAC If there is no speech therapist at the institution where you underwent your surgery the supraregional distribution centres CHU de Qu bec or CHUM will enter into an agreement with your institution and another healthcare professional who can register you nurse physician social worker etc In order to register you the healthcare professional must fill out a registration form that includes your personal information You must also provide the name of two resource people in case we are unable to reach you The contact information for these people must be different than yours In addition to be registered you must sign the Declaration of Commitment to the SAL PAC This declaration stipulates that you understand and agree to respect the rules and procedures of the SAL PAC The declaration is found on page 9 of this doc
14. tion centres for the SAL PAC Service aux laryngectomis s Programme d aide la communication This program provides patients who have undergone major ENT surgery with communication aids To receive services from the SAL PAG you must sign the Declaration of Commitment on the next page By signing you undertake to respect your commitments to the SAL PAG The SAL PAC reserves the right to exclude any patients who do not respect their commitments For any question concerning the SAL PAC please contact the healthcare professionals in your region or contact the supraregional distribution centres directly Their contact information is on page 11 of this document Revised 2014 8 il o CHUM E gt de Qu bec SERVICE AUX LARYNGECTOMIS S ET PROGRAMME D AIDE LA COMMUNICATION SAL PAC DECLARATION OF COMMITMENT TO THE SAL PAC Patient s name RAMQ no Expiry date I residing in acknowledge that I have received the SAL PAG user guide that I understand my commitments and that I accept them By signing this declaration of commitment to the SAL PAG I undertake to accept the operating rules and procedures of the SAL PAC use any communication aid that was loaned or given to me correctly and only for the purpose for which it was provided ook after any communication aid that has been loaned or given to me and follow the instructions provided to that end keep the assigned communication
15. ument Revised 2014 4 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN HOUSE User Guide USER RESPONSIBILITIES SAL PAC users agree to accept the operating rules and procedures of the SAL PAC and sign the Declaration of Commitment use the communication aids that were loaned or given to them correctly and only for the purpose for which they were provided look after the communication aids that were loaned or given to them and follow the instructions provided to that end Maintenance tips are included in this document on page 12 keep the assigned communication aids and not to exchange give away or sell them respect all safety rules pertaining to the use of the communication aids for themselves and others accept the communication aids that meet their needs whether they are new or reconditioned notify those responsible for the program of any damage that has occurred replace the aid if it is stolen lost or damaged through negligence or abuse fire or vandalism respect the quotas established for the communication aids and supplies return the communication aid to the SAL PAC if they no longer use it or if they use another means of communication notify those responsible for the SAL PAC of any change in their address The supraregional distribution centres CHU de Qu bec or the CHUM will contact
16. vrnnnrnnrrnernnennrenernnennnennnennr 9 RETURN OF A COMMUNICATION AID ccccccecececececececeeeceeeceeeceusecueeceneceesaeesaeesanesaneeas 10 CONTACT INFORMATION FOR SAL PAC SUPRAREGIONAL DISTRIBUTION CENTRES D ee PEE eee ees ee aes 11 COMMUNICATION AID CARE 20 0 0 ccc ccccccecececececcceeeceeecceecaeeecseceeecuueeeueeaueeaueeaueeaueeateeeaeeeaes 12 SOME HELPFUL ADDRESSES FOR ENT PATIENTS iii 14 Revised 2014 2 SERVICE AUX LARYNGECTOMISES ET PROGRAMME D AIDE ALA CHUM COMMUNICATION SAL PAC e Programs for Laryngectomized Tracheostomized and Glossectomized Patients CHUN de Qu bec User Guide INTRODUCTION Major ENT surgeries can cause significant communication problems for patients That is why the Minist re de la Sant et des Services Sociaux du Qu bec established a program to distribute communication aids to people who have undergone this type of surgery The program is divided into two parts The Service aux laryngectomis s SAL is for people who have undergone a total laryngectomy The Programme d aide la communication PAC is for those who have undergone a partial laryngectomy a tracheotomy a glossectomy or who have other communication problems because of a major and persistent ENT impairment The speech language pathology services of the Centre hospitalier universitaire de Qu bec CHU de Qu bec and the Centre hospitalier de l Universit de Montr al CHUM manage the program Users of the SAL PAC are lin
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